What rare disease patients and families want is a simpler life.Discover here what makes the relationship between the members
Who is more qualified than the patients themselves to guide us through their challenges?
Let’s make sure we listen to them to understand their day-to-day life and identify relevant areas for research improvement. Let’s ensure they take the seat they deserve as clinical research key participants.
At Kayentis, our mission aims at collecting patient’s voice. Through strategic partnerships with expert patients and patient advocacy groups, we further our knowledge from their personal experience, and integrate their invaluable insights into our solutions and services.
At Kayentis, we have forged meaningful partnerships with patient experts and advocates across diverse therapeutic areas, including cancer and multiple rare disease patient groups, in the US and in various EU countries. These strategic collaborations enable us to continually deepen our comprehension of patient challenges, resulting in ongoing improvements to the user-friendliness of our solution and our patient facing documentation.
More patient insights
What rare disease patients and families want is a simpler life.Discover here what makes the relationship between the members
A patient association in rare diseases is first and foremost families who all have one thing in common: they
Cultural differences and individual preferences have a significant impact on healthcare and clinical trial experience. Solutions exist in attempt
We have established partnerships with site experts spanning various disciplines and countries. This ensures that we remain attuned to the constraints of sites and focused on their satisfaction, in parallel to our commitment to meet the needs of both patients and research sites.
More site experts insights
In this last episode on pediatric clinical trial challenges, Begoña Nafria, pediatrician and patient engagement lead at SJD Barcelona
In this third episode on pediatric clinical trial challenges, Begoña Nafria, pediatrician and patient engagement lead at SJD Barcelona
In this second episode on pediatric clinical trial challenges, Begoña Nafria, pediatrician and patient engagement lead at SJD Barcelona
We are proud to be an active member of the Critical Path Institute’s eCOA Consortium: we contribute to providing scientific leadership and best practice recommendations around eCOA technologies and services that support the collection of patient-focused outcomes data in clinical trials.
Our aims are to help to advance the future of clinical trials and contribute to ongoing scientific research.
Last publications in collaboration with eCOA Consortium
Kayentis announces that it has joined the C-Path’s ePRO Consortium, a nonprofit organization dedicated to advance the science of
Kayentis Europe
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