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Patients insights

How to improve the collaboration between expert patients and healthcare companies?

Why and how could the partnerships between expert patients and healthcare companies be improved?In this insightful interview, Françoise Sellin, a dedicated expert patient and cancer survivor, shares her unique perspective...

Bringing the patient’s voice to clinical trials

In this interview, engagement advocate and cystic fibrosis patient Thomas Smith shares his experiences of being the patient voice in...

Working with patient associations: What is the key to a positive interaction?

What rare disease patients and families want is a simpler life.Discover here what makes the relationship between the members of...

How a patient association gave rise to a company

A patient association in rare diseases is first and foremost families who all have one thing in common: they need...

Direct insights from cancer patients: How they help us understand disease burden and the need for an individualized approach

Cultural differences and individual preferences have a significant impact on healthcare and clinical trial experience. Solutions exist in attempt to...

Working in collaboration with patient associations: insights from Estelle Haenel, Kayentis Medical Director

Whilst we hear a lot about working in collaboration with patient representatives, not so many industrial stakeholders are actually doing...

DCT and health disparities: Insights from a patient advocate

Basile Trimbur, Medical and Scientific Officer, Patient Engagement Lead at Kayentis, interviews Trishna Bharadia, Health Advocate & Patient Engagement Advisor,...

Patients as partners in clinical trials – Survey results

We collaborate with patients to characterize their clinical trials expectations and better understand their readiness for remote clinical trials.This 11-question...

Do we have the right understanding of how patients perceive digital clinical trials?

Interview with Trishna Bharadia, Health Advocate & Patient Engagement Advisor on the 1,133 patients survey results conducted by Kayentis in...

Do we really know what clinical trial patients need?

Let’s challenge our beliefs: Do we really know what clinical trial patients need? Do we have the right understanding of...
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Let’s listen to what patients have to tell us!

Because of the pandemic, have you felt... …anxious for your/your family’s health? …worried for your job? …isolated or lonely during...

Partnering with patients to boost clinical research in rare diseases

Although much progress has been made in developing scientific knowledge and conducting clinical research in rare diseases, serious challenges remain....