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Bringing the patient’s voice to clinical trials

Last updated: September 3, 2024

In this interview, engagement advocate and cystic fibrosis patient Thomas Smith shares his experiences of being the patient voice in clinical trials. He discusses his collaborations with pharmaceutical and biotech companies, setting expectations for patient involvement with clinical trial stakeholders, and exploring various ways patients can contribute to the clinical trial design process.

Listen to this interview and gain firsthand insights from a patient advocate on their experience working with pharmaceutical companies. Learn how to effectively leverage relationships with different types of advocates in various parts of trial design, and become better informed about what patient advocates seek from partnerships with pharmaceutical companies.

Thomas Smith
Independent Patient Engagement Consultant

Basile Trimbur
Medical and Scientific Officer, Patient Advocacy Lead @Kayentis

Check out the “Clinical Trial Chronicles” podcast on Spotify for more insights on clinical trials!

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Rethinking Phase 1 Oncology Trials with Electronic Patient-Reported Outcomes

November 4 • 11-12AM EDT / 4-5PM GMT / 5-6PM CET
The primary aim of Phase 1 oncology clinical trials is to determine the safety of a new treatment, and to...