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Patient voice

Working with patient associations: What is the key to a positive interaction?

What rare disease patients and families want is a simpler life.Discover here what makes the relationship between the members of the patients’ association and a company work so well.https://www.youtube.com/watch?v=R65yKqxo4zQ Check...

How a patient association gave rise to a company

A patient association in rare diseases is first and foremost families who all have one thing in common: they need...

Direct insights from cancer patients: How they help us understand disease burden and the need for an individualized approach

Cultural differences and individual preferences have a significant impact on healthcare and clinical trial experience. Solutions exist in attempt to...

Working in collaboration with patient associations: insights from Estelle Haenel, Kayentis Medical Director

Whilst we hear a lot about working in collaboration with patient representatives, not so many industrial stakeholders are actually doing...

DCT and health disparities: Insights from a patient advocate

Basile Trimbur, Medical and Scientific Officer at Kayentis, interviews Trishna Bharadia, Health Advocate & Patient Engagement Advisor, on decentralized clinical...

Patients as partners in clinical trials – Survey results

We collaborate with patients to characterize their clinical trials expectations and better understand their readiness for remote clinical trials.This 11-question...

Do we have the right understanding of how patients perceive digital clinical trials?

Interview with Trishna Bharadia, Health Advocate & Patient Engagement Advisor on the 1,133 patients survey results conducted by Kayentis in...
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