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Patient voice

Empowering healing: The impact of patient partnerships in clinical trials

The landscape of clinical trials has evolved significantly over recent decades, moving from a purely scientific focus to a more patient-centric approach. This transformation acknowledges the crucial role patients play...

How to improve the collaboration between expert patients and healthcare companies?

Why and how could the partnerships between expert patients and healthcare companies be improved?In this insightful interview, Françoise Sellin, a...

Bringing the patient’s voice to clinical trials

In this interview, engagement advocate and cystic fibrosis patient Thomas Smith shares his experiences of being the patient voice in...

Working with patient associations: What is the key to a positive interaction?

What rare disease patients and families want is a simpler life.Discover here what makes the relationship between the members of...

How a patient association gave rise to a company

A patient association in rare diseases is first and foremost families who all have one thing in common: they need...

Direct insights from cancer patients: How they help us understand disease burden and the need for an individualized approach

Cultural differences and individual preferences have a significant impact on healthcare and clinical trial experience. Solutions exist in attempt to...

Working in collaboration with patient associations: insights from Estelle Haenel, Kayentis Medical Director

Whilst we hear a lot about working in collaboration with patient representatives, not so many industrial stakeholders are actually doing...

DCT and health disparities: Insights from a patient advocate

Basile Trimbur, Medical and Scientific Officer, Patient Engagement Lead at Kayentis, interviews Trishna Bharadia, Health Advocate & Patient Engagement Advisor,...

Patients as partners in clinical trials – Survey results

We collaborate with patients to characterize their clinical trials expectations and better understand their readiness for remote clinical trials.This 11-question...

Do we have the right understanding of how patients perceive digital clinical trials?

Interview with Trishna Bharadia, Health Advocate & Patient Engagement Advisor on the 1,133 patients survey results conducted by Kayentis in...