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How a patient association gave rise to a company

Patients insightsRare disease
Last updated: June 24, 2024

A patient association in rare diseases is first and foremost families who all have one thing in common: they need a cure to be found and made available.

 Discover how French company AtmosR worked with a patient association to tackle the need to find a cure for Ondine:

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About the author
Picture of Marc Chaperon

Marc Chaperon

Estelle brings 20+ years of experience in pre-clinical and clinical research from Top 5 Pharma and Biotech firms. Leading projects across Phases 1 to 4 in diverse therapeutic areas, she offers deep insights into clinical science, operations, and regulatory intricacies. Appointed as Chief Medical Officer at Kayentis in May 2019.
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