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Patients insights

Webcast

How to improve the collaboration between expert patients and healthcare companies?

Why and how could the partnerships between expert patients and healthcare companies be improved?In this insightful interview, Françoise Sellin, a dedicated expert patient and cancer survivor, shares her unique perspective...

Podcast

Bringing the patient’s voice to clinical trials

Patient’s voice Patients insights

In this interview, engagement advocate and cystic fibrosis patient Thomas Smith shares his experiences of being the patient voice in...

Webcast

Working with patient associations: What is the key to a positive interaction?

Patients insights Rare disease

What rare disease patients and families want is a simpler life.Discover here what makes the relationship between the members of...

Webcast

How a patient association gave rise to a company

Patients insights Rare disease

A patient association in rare diseases is first and foremost families who all have one thing in common: they need...

Article

Direct insights from cancer patients: How they help us understand disease burden and the need for an individualized approach

Oncology Patients insights

Cultural differences and individual preferences have a significant impact on healthcare and clinical trial experience. Solutions exist in attempt to...

Webcast

Working in collaboration with patient associations: insights from Estelle Haenel, Kayentis Medical Director

Patients insights

Whilst we hear a lot about working in collaboration with patient representatives, not so many industrial stakeholders are actually doing...

Podcast

DCT and health disparities: Insights from a patient advocate

Decentralized trials Patients insights

Basile Trimbur, Medical and Scientific Officer, Patient Engagement Lead at Kayentis, interviews Trishna Bharadia, Health Advocate & Patient Engagement Advisor,...

Infographic

Patients as partners in clinical trials – Survey results

Patients insights

We collaborate with patients to characterize their clinical trials expectations and better understand their readiness for remote clinical trials.This 11-question...

White Paper

Do we have the right understanding of how patients perceive digital clinical trials?

Patients insights

Interview with Trishna Bharadia, Health Advocate & Patient Engagement Advisor on the 1,133 patients survey results conducted by Kayentis in...

Webcast

Do we really know what clinical trial patients need?

Patients insights

Let’s challenge our beliefs: Do we really know what clinical trial patients need? Do we have the right understanding of...

Infographic

Let’s listen to what patients have to tell us!

Patients insights

Because of the pandemic, have you felt... …anxious for your/your family’s health? …worried for your job? …isolated or lonely during...

Article

Partnering with patients to boost clinical research in rare diseases

Patients insights Rare disease

Although much progress has been made in developing scientific knowledge and conducting clinical research in rare diseases, serious challenges remain....

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Breaking barriers in pediatric clinical trials: perspectives from two expert...

Ensure successful outcomes with strong patient collaboration at every stage...

Empowering healing: The impact of patient partnerships in clinical trials

Collecting PRO data in leukemia clinical research: the only way...

How to improve the collaboration between expert patients and healthcare...

Bringing the patient’s voice to clinical trials

About the author

Marc Chaperon

Estelle brings 20+ years of experience in pre-clinical and clinical research from Top 5 Pharma and Biotech firms. Leading projects across Phases 1 to 4 in diverse therapeutic areas, she offers deep insights into clinical science, operations, and regulatory intricacies. Appointed as Chief Medical Officer at Kayentis in May 2019.

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